Sarcoma Treatment Centers

LMSDR highly recommends that you make every effort to be treated at, or at least get a second opinion from, a recognized high volume sarcoma center.

WHY SHOULD YOU TO GO TO A SARCOMA CENTER?

Sarcoma specialists see at least 100 sarcoma patients a year. Some oncologists have never treated another leiomyosarcoma patient.
Team of specialists who work only with sarcoma and do continuing education in sarcomas.
Access to clinical trials and new treatments.
Overall survival rates are better for those treated at a sarcoma center.

CRITERIA FOR A RECOGNIZED SARCOMA CENTER

Team of sarcoma specialists including oncologists, physician assistants, radiologists, infusion nurses, therapists.
At least one staff member who belongs to sarcoma-oriented medical organization such as Connective Tissue Oncology Society (CTOS)
Journal published research and case studies.
Tumor board where sarcoma team meets to discuss patient care.
At least 50 sarcoma patients yearly.
MRI imaging available on site, PET scans desirable.
Clinical trials.
Support such as social workers, psychologists, psychologists. Support group desirable.

Criteria established by the Sarcoma Alliance.

ONLINE SECOND OPINIONS

Stanford University Medical Center

Dana Farber Cancer Institute

John Hopkins Hospital
They offer surgical, pathology and radiology consultations for a limited amount of US states.
For their eRadiology program call 443-287-7378

Moffitt Cancer Center

University of California of Los Angeles, (UCLA)

Fox Chase

Memorial Sloan Kettering (International Patients)

SARC Multidisciplinary Tumor Board

SARC - Sarcoma Alliance Through Research Collaboration, offers an expert virtual tumor board to oncologists globally each month. Your doctor presents your case and they give their treatment recommendations. FREE - no charges to patient or doctor.

Have your oncologist apply HERE.

FINANCIAL HELP FOR SECOND OPINIONS

Sarcoma Alliance’s Hand-in-Hand Program Offers reinbursement for up to $1,000 for first time visits at a sarcoma center.

Sarcoma-Oma Foundation

NORTHWEST SARCOMA Provides grants of $500 to sarcoma patients currently undergoing treatment in AK, ID, MT, OR, or WA.

Finish Sarcoma Foundation
Travel funds for John Hopkins sarcoma patients from MD, PA, VA, OH, or WV
National Patient Travel Center
Finds free air travel and low cost lodging for patients