2013 LMSdr Grant
$100,000 awarded to Dr. Matt van de Rijn
$150,000 Collaborative Grant
with LMSdr and the Liddy Shriver Initiative.
ESUN September 2013
Dr. Matt van de Rijn’s LMS Research
Publications, Discoveries, and Videos
Dispatches from My Village
Susan Coleman discusses our struggle in 'fairy tale' terms to explain the REAL research of Dr. Matt van de Rijn.
on the campaign to STOP Uterine Morcellation.
Add LMSdr to your Amazon Smiles account and LMSdr will receive a donation for each purchase you make at Amazon.
Subscribe to LMSeAlerts,
a monthly newsletter for families and professionals.
BUY T-shirts and Water Bottles!
Donate Your Tissue Samples to the
LMS Paraffin Block Bank
LMSdr Executive Director discusses
Tissue bank history and the importance of donating.
watch the video . . .
February 8th: Finding a cure Concert,
The Windjammer, Isle of Palms, SC
Proceeds to benefit LMSdr.
Click Here to donate. Be sure to write "Windjammer" in the comment section.
April 24 & 25th: 2014 World Orphan Drug Conference,
This is an excellent networking event for advocates of rare diseases
and pharmaceutical researchers. LMSdr will be represented by Sharon
Anderson, Executive Director and Sarah Robinson, Scientific Advisory
April 24th: "Lady Bugs" LMS Support Group Meeting
Location TBA. Contact Daryl firstname.lastname@example.org
May 30-June 3 2014: 50th Annual ASCO Conference,
Debra Simons, LMSdr Scientific Advisory Board Member will be attending
the American Society of Clinical Oncology (ASCO) and bringing us back
the most up-to-date sarcoma information.
January 27 & 28th: 2014 Personalized Medicine World Conference,
Silicon Valley, California
LMSdr’s Sharon Anderson, Executive Director and Sarah Robinson,
Scientific Advisory Board Member will be learning how patients can
access their own biomarker testing for a tailored individual treatment
2013 LMS Retreat
Photos, DVD and Memories!
CTOS Conference in NY
Oct. 10th - Nov. 2nd
~ Fundraisers ~
Songs for Hope
Concert and auction benefitting LMSdr
May 3, 2014
Port Jefferson, NY
Nurses Working not Wishing for the Cure
Two Events in November 2013
Flock of Segals
July 20, 2013
The Fight for Tina
February 2, 2013