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Information & Support
for
Leiomyosarcoma

The LMS community has a wealth of information and support for families. LMSdr does not give individual treatment advice, but offers the following resources for your own pursuit of investigation.

LMS Information Research Links
LMS On-line Discussion Groups Research Studies
(also known as Listserves) Complementary Therapies
LMS Local Support Groups Patient Transportation Help
Advocacy Other Resources




  LMS Information

Leiomyosarcoma Is A Rare Cancer
http://www.leiomyosarcoma.info

LMSeAlerts – a free LMS news bulletin
http://www.lmsdr.org/ealerts.php
https://groups.yahoo.com/neo/groups/LMSeAlerts/info

Leiomyosarcoma (LMS) Lifeline
LMS Patient Information and Support
http://lmslifeline.com

  LMS On-line Discussion Groups
also known as Listserves

ACOR L-M-Sarcoma
http://listserv.acor.org/archives/l-m-sarcoma.html

LMSarcoma Yahoo Health Groups - Leiomyosarcoma Internet Resources
https://groups.yahoo.com/neo/groups/LMSarcoma/info

Uterine Leiomyosarcoma & Hormone Therapy Discussion & Support Group
https://groups.yahoo.com/neo/groups/ULMS-HormoneTherapy/info


  LMS Local Support Groups

Coordinators for new groups
Kathy and Warren Bailey wkbailey@gci.net

San Francisco Bay Area LMS Group
2taikomom@gmail.com


  Advocacy

Patient Advocate Foundation
Legal help for cancer patients

http://www.patientadvocate.org

NCI Listens & Learns
Give your opinions to NCI on monthly topics

http://ncilistens.cancer.gov was discontinued

  Research Links

NIH Medline Plus
– dictionary, anatomy, drug, encyclopedia & health news

http://medlineplus.gov

Steve Dunn’s Care Guide
Excellent learning source on all cancer topics

http://www.cancerguide.org

ChemoCare.com
Chemotherapy definitions, side effects & support

http://www.chemocare.com

Cancer Help UK
Excellent section on treatments and chemo definitions

http://www.cancerhelp.org.uk

The Doctor’s Doctor
Pathology report help

http://www.thedoctorsdoctor.com/f_home.html

  Research Studies

PubMed -The National Library of Medicine
Search published research articles

http://www.ncbi.nlm.nih.gov/PubMed

NIH Clinical Trials Listings
Search for clinical trials – solid tumor or sarcoma

http://www.ClinicalTrials.gov

CTOS – Connective Tissue Oncology Society
Sarcoma research presentations from annual conferences

www.CTOS.org

ASCO – American Society of Clinical Oncology
Sarcoma research presentations from annual conferences

http://www.ASCO.org

CancerProgress.net
A project of ASCO, which represents 30,000 physicians who treat people with cancer and research new cures

http://www.cancerprogress.net

  Complementary Therapies

Quackwatch - Guide to Health Fraud
http://www.quackwatch.com

NIH - National Center for Complementary and Alternative Medicine
http://nccam.nih.gov

MSKCC – Herbs, Botanicals, and Other Products
http://www.mskcc.org/mskcc/html/11570.cfm

  Patient Transportation Help

The National Patient Travel HELPLINE
1-800-296-1217 : Call 24 hrs/7 days a week – any locations.

http://www.PatientTravel.org

  Other Resources

Edna's Foundation of Hope
https://www.facebook.com/pages/Ednas-Foundation-of-Hope/263931894235

ESUN -Electric Sarcoma Update Newsletter
Liddy Shriver Sarcoma Inititive

http://www.liddyshriversarcomainitiative.org

NCCN Clinical Practice Guidelines in Oncology for Sarcoma
http://www.nccn.org/professionals/physician_gls/default.asp

NW Sarcoma Foundation
http://www.nwsarcoma.org

SARC - Sarcoma Alliance for Research through Collaboration
http://www.sarctrials.org

Sarcoma Alliance
http://www.sarcomaalliance.org

Sarcoma Foundation of America
http://www.curesarcoma.org

Sarcoma UK
http://www.sarcoma.org.uk




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Last Edited - 31 January 2015 17:10 pm
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