Information & Support
for
Leiomyosarcoma

The LMS community has a wealth of information and support for families. LMSdr does not give individual treatment advice, but offers the following resources for your own pursuit of investigation.

LMS Information Research Links
LMS On-line Discussion Groups Research Studies
(also known as Listserves) Complementary Therapies
LMS Local Support Groups Patient Transportation Help
Advocacy Other Resources



  LMS Information

Leiomyosarcoma Is A Rare Cancer
http://www.leiomyosarcoma.info

LMSeAlerts – a free LMS news bulletin
http://health.groups.yahoo.com/group/LMSeAlerts

  LMS On-line Discussion Groups
also known as Listserves

ACOR L-M-Sarcoma
http://listserv.acor.org/archives/l-m-sarcoma.html

LMSarcoma Yahoo Health Groups - Leiomyosarcoma Internet Resources
http://health.groups.yahoo.com/group/LMSarcoma

Uterine Leiomyosarcoma & Hormone Therapy Discussion & Support Group
http://health.groups.yahoo.com/group/ULMS-HormoneTherapy


  LMS Local Support Groups

Coordinators for new groups
Kathy and Warren Bailey wkbailey@gci.net

Arizona LMS Group
Patti Lloyd lloydpd2007@yahoo.com

Arizona LMS Group
Robin McGraw robin.mcgraw@gmail.com

San Francisco Bay Area LMS Group
TaikoMom@sbcglobal.net

NW LMS Support Group (Seattle, WA area)
canicare4u@comcast.net

New England Area LMS Group
katiehmcd@beld.net


  Advocacy

Patient Advocate Foundation
Legal help for cancer patients
http://www.patientadvocate.org

NCI Listens & Learns
Give your opinions to NCI on monthly topics
http://ncilistens.cancer.gov

Cancer Action NOW
Drug access advocacy
http://www.canceractionnow.org

  Research Links

NIH Medline Plus
– dictionary, anatomy, drug, encyclopedia & health news
http://medlineplus.gov

Steve Dunn’s Care Guide
Excellent learning source on all cancer topics
http://www.cancerguide.org

ChemoCare.com
Chemotherapy definitions, side effects & support
http://www.chemocare.com

Cancer Help UK
Excellent section on treatments and chemo definitions
http://www.cancerhelp.org.uk

The Doctor’s Doctor
Pathology report help
http://www.thedoctorsdoctor.com/f_home.html

Cancer Medicine, 6th edition, American Cancer Society’s on-line textbook
Sec. 35 - Neoplasms of the Bone and Soft Tissue
http://tinyurl.com/qkpgp

  Research Studies

PubMed -The National Library of Medicine
Search published research articles
http://www.ncbi.nlm.nih.gov/PubMed

BioMail Alerts from PubMed
Auto alerts of new published studies
http://biomail.sourceforge.net/biomail/index.html

NIH Clinical Trial Alerts & Advisories
Expediated release of findings of clinical trials
http://www.nlm.nih.gov/databases/alerts/clinical_alerts.html

NIH Clinical Trials Listings
Search for clinical trials – solid tumor or sarcoma
http://www.ClinicalTrials.gov

CTOS – Connective Tissue Oncology Society
Sarcoma research presentations from annual conferences
www.CTOS.org

ASCO – American Society of Clinical Oncology
Sarcoma research presentations from annual conferences
http://www.ASCO.org

  Complementary Therapies

Quackwatch - Guide to Health Fraud
http://www.quackwatch.com

NIH - National Center for Complementary and Alternative Medicine
http://nccam.nih.gov

NCI - Complementary and Alternative Medicine
http://cancer.gov/cancerinfo/treatment/cam

MSKCC – Herbs, Botanicals, and Other Products
http://www.mskcc.org/mskcc/html/11570.cfm

  Patient Transportation Help

The National Patient Travel HELPLINE
1-800-296-1217 : Call 24 hrs/7 days a week – any locations.
http://www.PatientTravel.org

Local Transportation Help
http://tinyurl.com/jyqwv

  Other Resources

Conticanet (a consortium of European sarcoma resources)
http://www.conticanet.eu

Edna's Foundation of Hope
http://www.ednashope.org

ESUN -Electric Sarcoma Update Newsletter
Liddy Shriver Sarcoma Inititive
http://www.liddyshriversarcomainitiative.org

EORTC - European Organization for Research and Treatment of Cancer
http://www.eortc.be

NCCN Clinical Practice Guidelines in Oncology for Sarcoma
http://www.nccn.org/professionals/physician_gls/default.asp

NW Sarcoma Foundation
http://www.nwsarcoma.org

SARC - Sarcoma Alliance for Research through Collaboration
http://www.sarctrials.org

Sarcoma Alliance
http://www.sarcomaalliance.org

Sarcoma Foundation of America
http://www.curesarcoma.org

Sarcoma-UK
http://www.sarcoma-uk.org




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Last Edited - 7 January 2008 01:16 am