Find Help with Leiomyosarcoma
Join a listserv to get advice from people who have been through what you are going through.
Contact a sarcoma center in your area.
Visit these helpful links:
Treatment Possibilities, Patient to Patient, Caregiver's Corner, Our Stories, What is LMS?

Our Stories
LMS Warriors share their struggles with Leiomyosarcoma. To share your story, Contact Us. Read Rosalie's Journey with her 2010 update.

Brian Copeland's Special Performance for LMSdr
October 22, 2009
Brian Copeland performed his solo show, Not a Genuine Black Man, at The Julia Morgan Center for the Arts with proceeds going to LMSdr.
Find out more . . .

$25,000 Grant
August 2009
$25,000 Grant awarded to Dr. Sandra Orsulic of Cedars Sinai Medical Center in Los Angeles, CA.
read more . . .

Bandana Day Fundraiser
April 30, 2009
A big Thank You to the Sting Cancer group at Green Bay Preble High school in Wisconsin for their creative Fundraising efforts!
read more . . .

Golf Tournament Fundraiser
May 25, 2009
Frasher's Steakhouse and Lounge 6th Annual Charity Golf Tournament, benefiting the LMSdr, will again be held this year to honor the memory of Misty Layne Morgan.
read more . . .

Soccer Tournament Fundraiser
May 30th, 2008
Annual soccer tournament was again held this year to honor the memory of Elaine Brexel. For more information, click HERE

Hugfest 2009
April 16 - 19
NLMSF is hosting the annual Hugfest. This is your opportunity to renew friendships; see fellow LMS warriors, caregivers and loved ones; make new friends; and learn more about LMS. Find out more . . .

The Letters
A captivating new book by LMS Survivor, Mary Curtin-Savard is a story of love and determination. All proceeds go to soft tissue sarcoma research Read more . . .

Secrets of a Man's Garden
A new book, by former board member, Gloria Schwartz, about one man's journey with LMS. All profits go to LMSdr Read more . . .

LMSdr Board member gives speeches for the American Cancer Society
Warren Bailey delivered speeches to inspire and raise awareness Read more . . .

Finding Support
Read this CNN.com article about Susannah Reid and the importance of Listserves and finding help and support. This article features our own SAC member, Dr. Dee, and our friends at ACOR.org. Read More . . .

2008 Racquetball Tournament
Oct 2 - 5
Hopes and Dreams Fundraiser
For the third consecutive year, Warren Bailey brings us information on this great Alaskan fundraiser. Click HERE for more information.

Sarcoma mini-symposium at NYU
A "Sarcoma Update" took place on Friday, July 18th, at NYU Medical Center read more . . .

Berkwood Hedge 3rd Grade Class
To help fund LMS research, the Berkwood Hedge 3rd Grade class sold soup and cookies.
Your parents and your teacher Becca must be very proud of you.
We are!   Thank you!

News about Deforolimus
Learn about Ariad's Phase III SUCCEED trial. Suzie Siegel (LMS patient and reporter) interviewed Ariad representatives read more . . .
View Trial Locations

Testing All Uterine Sarcomas
Shirley Collings, ULMS survivor, spoke at the British Sarcoma Group Conference. Click here for more information.

Show your support
Help Raise Awareness - Click HERE for Pins, Ribbons and Wristbands!

Fundraiser for LMS research. Alaska Racquetball tournament took place Aug 23-26 with our own LMS champ, Warren Bailey. Click here for more information.
Click here to see what happened last year.

LMSdr Joint Research Grant
Joining with Liddy Shriver Foundation, LMSdr has awarded $50,000 to NYU for leiomyosarcoma research.
read more . . .

Presentation, June 15, 2007
Osteoporosis and Bone Health for Cancer Patients.
read more . . .

Gleanings from a Novice
Reports on LMS Tissue Sample Repository and LMS Microarray Study
read more . . .

Collecting Locations
LMSdr has sent zipcode information to Ariad Pharmaceuticals. This information will provide a better idea of the location of our LMS community. We will continue to gather and track this information. Please enter your zip code information.
Submit Your Info . . .

Donate Tissue Samples Again!
Dr. John Brooks announces his new Leiomyosarcoma Tissue Repository Bio-Bank available to all researchers. Donate your Stanford samples or new tissue. read more . . .

Participate in a Study!
Study on LMS risk factors. Does your family have more than one member diagnosed with LMS or kidney cancer? Contact Stephanie Steinbart at NCI. 1-800-518-8474.

Personal Advocacy!
Pamela Sprott, LMS survivor, represented the LMS community in a rally "On the Hill"... read more . . .

Join a Listserve!
Joining a Listserve could help save your life. There are many listserve members who will tell you what a major role their Listserve friends have made in helping them survive.
Find a Listserve . . .

Do Something Fun! eCards!
This website has several eCards you can mail to your friends.

Past Events
Check out information and events from 2006 and early 2007. read more . . .

Everyday Heroes Competition
The Team Sarcoma Initative wants to hear your stories! Tell us about your hero. read more . . .
Submission deadline is June 1, 2010
Brought to you by the Liddy Shriver Initiative.

$25,000 Grant
January 2010
$25,000 Grant awarded to Dr. Sandra Orsulic of Cedars Sinai Medical Center in Los Angeles, CA.
read more . . .

$50,000 Grant to Dr. Matt
Nov 2009
LMSdr announces $50,000.00 gift to Stanford to be used in The Dr. Matthijs van de Rijn Gift Fund
Dr. van de Rijn and his team continue to research leiomyosarcoma.
Read more about Stanford grants and research....

Marathon Fundraisers
The family of Molly Rehder participated in the June 26, 2009 - San Francisco Half-Marathon and the October 11, 2009 - Long Beach Marathon to raise funds for LMSdr. Read More . . .

Yard Sale Raises $800
On Sunday June 18th friends, family, and neighbors in one California neighborhood combed their garages, basements and attics for salable items to raise money for LMS research. It was a huge success! And it feels so good to see those "treasures" find new homes. Thank you everyone for the hard work.
Read More . . .

Hear My Cry
Read a new book by Leiomyosarcoma survivor, Tish Hagee Tucker. Click Here

In Memory
Dr. Doreen Kossove ended her battle with Leiomyosarcoma. Let us remember all the people she helped over the years, in so many ways. Please click here.

Now that's using your head!
Read about this very creative fundraiser from Valley Park High School in Missouri. Click here.

Half Marathon Fundraiser
Jan 25, 2009
Jenifer and Leslee participated in the Carlsbad Half Marathon in memory of Lt. Col. Thomas F. Mazzella... Click here for more information.

Patient Advocacy
November 2008
Bruce MacDonald gave a Patient Advocacy presentation at the "Meet the Experts" Seminar. Click here for more information.

Swim-A-Thon Fundraiser
Dec 6, 2008
Swimmers at Jenks High School are raising awareness and funds with a Swim-A-Thon... Click here for more information.

A very special Thank You to Courtney and Tyler Peragallo. Again in 2008, Courtney and Tyler held their Haunted Woods fundraiser to help LMSdr raise research funds. Sending you love and hugs from your mom's foundation.

NYC Marathon
Nov 2
Ky Hester ran in the NYC Marathon in support of LMS research. Read more . . ..

Stand Up To Cancer Alaska
Our own LMSdr Board member, Warren Bailey, discusses Cancer Research Funding. Read more ...

Stand Up To Cancer
September 5th, 2008 at 8pm
ABC, NBC, & CBS will simultaneously broadcast this special event. Check it out ...

Golf Clinic Fundraiser
August 2008
Thank You Helen Kurtin and friends of survivor Donna Brinkmeyer, for a golf clinic to raise funds for LMS Research. Read more ...

"Flip Flop" Fundraiser
July 2008
Read about the "Flip Flop" fundraiser in honor of Bernadette M. Hollis.Read more ...

Sarcoma Patient Registry
Sarcoma Foundation of America is developing a central database for Sarcoma patient information. We need you. Read more . . .

Team Sarcoma Annual Event
Our friends at the Liddy Shriver Foundation create a wonderful awareness campaign each year. This event is virtually worldwide. LMSdr will be participating again this year. To find a event near you, click here.

LMSdr Joint Research Grant - Update
Research co-funded by LMSdr Foundation and the Liddy Shriver Foundation. Eva Hernando, PhD describes her ongoing research in microDNA deregulation.
read more . . .

Marathon Fundraiser
June 1st, Amanda Tack ran in memory of her cousin, Dawn . . .Read more ...

Grant Awarded
$50,000 Grant awarded to collaborative effort of three researchers. Read more ...

Marathon Fundraiser
Tanya Parker is raising awareness and funds by running her first marathon... Click here for more information.

2008 Excellence in Care Award
Nominations are now being accepted for this award.
read more . . .

November 1–3, 2007: Advocacy
13th Annual CTOS Meeting was held in Seattle, WA
CTOS - Connective Tissue Oncology Society.
read the review . . .

October 2007 Fundraiser
A very special Thank You to Courtney and Tyler Peragallo for their Haunted Woods fundraiser to help LMSdr raise research funds. Sending you love and hugs from your mom's foundation.

2007 Team Sarcoma Initiative Team LMSdr held its 1st Annual Mini-Triathlon in Tulsa, Oklahoma on July 13, 14, and 15. "A Bad Luck Day for Sarcoma!" This initiative raises money for sarcoma research.
read more . . .

Leiomyosarcoma Quilt
This is the second LMS Quilt.
read more . . .
read about the first one . . .

Trial Update
Dr. Hensley Describes Her Adjuvant Gem/Tax Trial For ULMS.
read more . . .

LMSeAlerts To sign up and learn more about receiving this important news item, Click here

Book by LMS Survivor!
I can do this: Living with Cancer. Tracing a Year of Hope. by: Beverlye Hyman Fead