LEIOMYOSARCOMA DIRECT RESEARCH
LMSarcoma Direct Research Foundation (LMSdr)
was created to bridge the gap between Leiomyosarcoma
researchers and Leiomyosarcoma patients.
This Foundation will ...
advocate for more research
advocate for appropriate clinical trials
support research by direct funding
support research by publicizing clinical trials
provide information and support for patients
... and be a voice for the LMS community
We are working for the cure....
Welcome! LMSdr advocates on behalf of the LMS community. We urge you to do following to help yourself and others with LMS:
1. Participate in our paraffin tissue block research and banking
Send us your consent and we will do all the rest! EASY!!!
2. Subscribe to our LMSeAlerts newsletter for current news.
3. Join our Face Book Group https://www.facebook.com/groups/lmsdr/
4. Get a 2nd opinion at a major sarcoma center.
5. If you had a hysterectomy with laparoscopic morcellation,
contact Sarah : email@example.com
6. Join the ACOR online discussion group for LMS.
7. Register with the LMS/sarcoma patient registry by SFA.
8. Donate or hold a fundraiser to benefit LMSdr. We are a non-profit
tax-deductible charity. All of our fundraiser proceeds go to LMS
research grants. View our past grants.
Working not Wishing,
Sharon Anderson MSW, ACSW
Executive Director, LMSarcoma Direct Research Foundation
ULMS, stage IV, 12 yr. Thriver
2013 LMSdr Grant
$100,000 awarded to Dr. Matt van de Rijn
$150,000 Collaborative Grant
with LMSdr and the Liddy Shriver Initiative.
ESUN September 2013
Dr. Matt van de Rijn’s LMS Research
Publications, Discoveries, and Videos
Dispatches from My Village
Susan Coleman discusses our struggle in 'fairy tale' terms to explain the REAL research of Dr. Matt van de Rijn.
on the campaign to STOP Uterine Morcellation.
Add LMSdr to your Amazon Smiles account and LMSdr will receive a donation for each purchase you make at Amazon.
Subscribe to LMSeAlerts,
a monthly newsletter for families and professionals.
Join our FACE BOOK group!
BUY T-shirts and Water Bottles!
Donate Your Tissue Samples to the
LMS Paraffin Block Bank
LMSdr Executive Director discusses
Tissue bank history and the importance of donating.
watch the video . . .
April 24 & 25th: 2014 World Orphan Drug Conference,
This is an excellent networking event for advocates of rare diseases
and pharmaceutical researchers. LMSdr will be represented by Sharon
Anderson, Executive Director and Sarah Robinson, Scientific Advisory
April 24th: "Lady Bugs" LMS Support Group Meeting
Location TBA. Contact Daryl firstname.lastname@example.org
January 27 & 28th: 2014 Personalized Medicine World Conference,
Silicon Valley, California
LMSdr’s Sharon Anderson, Executive Director and Sarah Robinson,
Scientific Advisory Board Member will be learning how patients can
access their own biomarker testing for a tailored individual treatment
2013 LMS Retreat
Sept. 19-21 : Photos, DVD and Memories!
CTOS Conference in NY
Oct. 10th - Nov. 2nd
~ Fundraisers ~
to see all Fundraisers
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